From readiness to action: The capstone consultation before the rare readiness scorecard launch
by
5 5 people viewed this event.
The Canadian Organization for Rare Disorders will bring together patients, caregivers, clinicians, policymakers and industry representatives to help shape Canada’s upcoming Rare Readiness Scorecard. The interactive webinar will use discussions, case studies and live polling to identify priorities for improving rare disease diagnosis, treatment access, integrated care, data and accountability, with insights expected to inform the next phase of the Rare Disease Drug Strategy.